tag:blogger.com,1999:blog-8783958591789340446.post4323718034689016411..comments2023-05-14T02:24:45.402-07:00Comments on One Day at a Time: Feeling Left BehindAuntie Mhttp://www.blogger.com/profile/13164198266183028354noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-8783958591789340446.post-9787159046743961732011-10-29T06:29:46.619-07:002011-10-29T06:29:46.619-07:00Katy,
We were in the same hospital and I too didn...Katy,<br /><br />We were in the same hospital and I too didn't get to see my CDH baby for some time. It is so surreal yet real. You do feel so alone. Very happy that you were able to be a Mommy to Jacob - it is the little things we appreciate.<br /><br />Sending thoughts, prayers and Lung Function chants!<br />ElizabethElizabethhttps://www.blogger.com/profile/16490413342578432553noreply@blogger.comtag:blogger.com,1999:blog-8783958591789340446.post-34841488100747379092011-10-27T16:11:35.930-07:002011-10-27T16:11:35.930-07:00Keep loving on him. One thing I learned in all of...Keep loving on him. One thing I learned in all of my research is that NICU kids thrive when nurtured, even if its far less nurturing then we would like to give them. Every touch, every word, every moment you can help him feel loved, will produce a positive psychological response of oxytocin and endorphins. You're a great mommy with an amazing husband and daddy.<br /><br />Lisa<br />http://sandyspencebabies.blogspot.com/Lisa Spencehttps://www.blogger.com/profile/13684624326481394897noreply@blogger.comtag:blogger.com,1999:blog-8783958591789340446.post-20896104625002854072011-10-27T08:27:02.014-07:002011-10-27T08:27:02.014-07:00Katy,
What an eloquent post. The whole experience ...Katy,<br />What an eloquent post. The whole experience is surreal, but I know you are doing all the things that you can to Jacob's mom the best way you...most importantly, loving on him!<br /><br />Stable, stable, stable is what we will keep praying for! And I hope they can do his repair on Friday!!! Let me know if you need anything! Hugs!Lhttps://www.blogger.com/profile/17427528853595194343noreply@blogger.comtag:blogger.com,1999:blog-8783958591789340446.post-74524455787504369012011-10-27T05:59:36.218-07:002011-10-27T05:59:36.218-07:00I love this post for so many reasons. First and m...I love this post for so many reasons. First and most importantly, it sounds like Jacob is doing fantastic! Not many cdh babies on their first or second day of life are stabile enough for you to change bed linens and change the diaper! Some don't even tolerate touch for weeks!! That is an awesome sign of a special man!!! Keep fighting Jacob!<br />I also love this post because it expresses perfectly what I felt as well, and probably every cdh mama feels the day of birth - left behind. I had my baby in the wrong hospital and she had to be flown by airplane that night to a hospital 5 hours away. I never really got a good look at her. I was left with a folder from the Shands nicu and a phone number to call in to find out statuses. They would not discharge me, so I could not start the drive to Gainesville until the next day. I was okay that night - I did the pumping thing, read the bro code by barney stinson (aka neil patrick harris), and called in every couple of hours. I was told Dakota was doing well. But it was the next morning when the nurse handed me a knitted Christmas hat when it really hit me that this was not fair. Dakota was born on Christmas day(more than 7 weeks early) and I realized that she would never wear the hat they just handed me, not because she wouldn't make it - I always believed she would, but because it would be so long after Christmas before I could put her in clothes. I should have been going home with a baby in a cute hat and instead I was just desperately trying to get discharged so I could get in the car and get to the hospital where my baby was being put on ECMO. Now that miss Dakota is almost 3 I realize that our journey is a special one too and while we missed out on many things in those first days, we gained a lot more special experiences as well. Many, many prayers for continued progress and good stabile days for Jacob!<br />Hugs,<br />Jennifer<br />Mom to Dakota 12-25-2008<br />RCDH survivorJennifer Tenneyhttps://www.blogger.com/profile/00964328379682764404noreply@blogger.comtag:blogger.com,1999:blog-8783958591789340446.post-15488894561136928562011-10-27T05:22:28.352-07:002011-10-27T05:22:28.352-07:00I totally understand the feeling of being left beh...I totally understand the feeling of being left behind. I wasn't discharged for four days, but was allowed to visit, but my husband who was there for the transport and had been able to visit more often was friendly with the nurses and knew where everything was. Even now, when we go back to visit, I don't go visit the ECMO hospital unless he's with me. I just didn't feel very connected to that place. The NICU still feels like home though. It's such a strange feeling. <br /><br />Glad to hear everything is going so well :D<br /><br />Bonnie<br />Mom to LCDH survivor Elijah<br />fortunatefate.blogspot.comBonniehttps://www.blogger.com/profile/06257897063300493081noreply@blogger.com