Let's Start at the Very Beginning...

On September 15th, Katy and Andy found out that Baby Jacob has a life-threatening condition called Congenital Diaphragmatic Hernia (CDH). CDH is a very serious condition in which a hole in the diaphragm allows abdominal organs to move into the chest restricting lung development. In Jacob's case, his liver is also squishing his heart and displacing other organs. CDH occurs in about 1 out of every 3,000 pregnancies and has a mortality rate of 50%. To make matters more complicated, Jacob has Right-Sided CDH which only occurs in about 10% of CDH cases and is typically more severe. They are so blessed to have found this out when they did, or Baby Jacob would have surely died at birth.

They will be delivering at UW Hospital in Seattle and later transferred to Seattle Children’s. Thank you to everyone who has already begun praying, and everyone who will now. Baby Jacob is blessed to have all of you thinking and praying for him.

Little Peepers

Oct 29, 2011 -Jacob has been progressing very well after yesterday's surgery.  All his levels that need to go up (O2 & ph) are going up, CO2 that is needing to go down is going down. His blood pressure which started quite high due to the trauma of surgery has stabilized to where the doctors would like it to be.  Jacob is now only on 50% oxygen (we breathe 21-23%) and although he is still on the ventilator, he's doing the work himself. His blood oxygen levels are at 100%, another great sign!  His lungs are functioning on both sides, but to what extent, Katy and Andy are not sure.

Today has been a little tough because Jacob has shown signs of pain and discomfort.  He has been really jittery, and shudders quite a bit at times. He has been given more Morphine, on top of the Epidural to ease his pain.  He has been hypersensitive to touch and sound at times, but there have been times today where he has had his eyes open and was comfortable and alert.  Katy and Andy find it hard to leave his bedside due to the fact that they don't want to miss any of his awake and alert times.

Katy and Andy long for the day when they can spend time holding their precious little gift from God! Seeing him look at you makes it that much harder to resist just scooping him up!


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3 comments:

  1. Burnworth FamilyOctober 30, 2011 at 9:24 AM

    This picture is so sweet. It is great to see little Jacob bright eyed! You can see the determination he has to survive and we all know that God is looking down and giving him the strength to move forward. We are all glad to hear that he is progressing so well. We will continue to pray and keep all of you in our thoughts.

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  2. CorinneOctober 30, 2011 at 1:09 PM

    This picture melts my heart and brings back so many memories of our Samuel just a few short months ago. I remember being so overwhelmed by all the tubes and lines - and then within a couple of weeks, I knew what each one was for, what each number and medication meant. It is a tough journey - and now I look at our Samuel laying here kicking and babbling on the bed next to me and laughing at his 5 year old brother Jacob. Hope and strength being sent to you.

    Your sweet Jacob is doing so so well - what blessings! Those cuddles will come soon and will be the sweetest you have ever known. We are following your journey and praying.

    Corinne in Calgary, Ab
    mama to Samuel, lcdh, born Feb.1/11
    www.samuelslight.blogspot.com

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  3. ElizabethOctober 30, 2011 at 3:21 PM

    He is doing wonderfully! He has such a sweet face! Patience - soon enough you will be abel to hold him it takes time. Sending thoughts and prayers - always!

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