Let's Start at the Very Beginning...

On September 15th, Katy and Andy found out that Baby Jacob has a life-threatening condition called Congenital Diaphragmatic Hernia (CDH). CDH is a very serious condition in which a hole in the diaphragm allows abdominal organs to move into the chest restricting lung development. In Jacob's case, his liver is also squishing his heart and displacing other organs. CDH occurs in about 1 out of every 3,000 pregnancies and has a mortality rate of 50%. To make matters more complicated, Jacob has Right-Sided CDH which only occurs in about 10% of CDH cases and is typically more severe. They are so blessed to have found this out when they did, or Baby Jacob would have surely died at birth.

They will be delivering at UW Hospital in Seattle and later transferred to Seattle Children’s. Thank you to everyone who has already begun praying, and everyone who will now. Baby Jacob is blessed to have all of you thinking and praying for him.


Oct 21, 2011 -A very stressful day yesterday. Katy had an amniocentesis to check Jacob's lung maturity. The amnio results were not favorable.  The results put him in a category of a 23% chance of having respiratory distress after birth.  It was an emotional roller coaster. First, excited for Jacob to be born. Then scared for Jacob to be born hearing that his lungs still aren't mature enough. It was a big blow to Katy and Andy as they had emotionally prepared to have a baby by today. They are bummed but of course don't want to put Jacob at a greater risk of respiratory distress than he already is.  So there will be no induction for another whole week.  Although, Jacob may still decide to come on his own.


  1. Although the wait is stressful, it's better to be safe than sorry!! Each extra day in the belly is a great way to prepare for the coming battle!

    Praying for Jacob and your family,

    Mom to LCDH and ECMO survivor Elijah

  2. I don't know how much has changed for you since you posted this last week. Just wanted to say that we are all with you, praying and loving your family. Each day in the womb is one more day to help his lungs grow.