Let's Start at the Very Beginning...

On September 15th, Katy and Andy found out that Baby Jacob has a life-threatening condition called Congenital Diaphragmatic Hernia (CDH). CDH is a very serious condition in which a hole in the diaphragm allows abdominal organs to move into the chest restricting lung development. In Jacob's case, his liver is also squishing his heart and displacing other organs. CDH occurs in about 1 out of every 3,000 pregnancies and has a mortality rate of 50%. To make matters more complicated, Jacob has Right-Sided CDH which only occurs in about 10% of CDH cases and is typically more severe. They are so blessed to have found this out when they did, or Baby Jacob would have surely died at birth.

They will be delivering at UW Hospital in Seattle and later transferred to Seattle Children’s. Thank you to everyone who has already begun praying, and everyone who will now. Baby Jacob is blessed to have all of you thinking and praying for him.

A Day of Thanksgiving

Nov 24, 2011 -Happy 1st Thanksgiving Little Jacob!  So many things to be thankful for this Thanksgiving, but first and foremost that Jacob is doing so well. The doctors weaned his oxygen down to 4 liters, and he continues to have a pulse ox of 100%! We got to put clothes on him for the first time. He looks adorable and cuddly.
1st Outfit!
We are also extremely thankful for our AMAZING family and friends that have held us up in every way, especially in prayer. In addition to family and friends, we are forever grateful for the wonderful nurses who take care of Jacob, as if he was their own! We have been so blessed on this day of grace and thanksgiving.
Nurse Patti


  1. Patti is such a wonderful nurse. So loving. Thank God for her and all Jacob's wonderful nurses and doctors. Nana

  2. What beautiful pictures! I am so THANKFUL that you have the staff at SCH caring for baby Jacob! I am so thrilled the extubation went well and they are already weaning down the high flow... All that news is full of blessings!!!

    Here's to much more good news!!! ;)

  3. So happy to read this update! Jacob looks so adorable in his clothes! He looks happy, healthy and content! Are you in NICU II now? I remember the first time Dakota got to wear clothes was the first time I really felt like she was a real baby! For me, that was one of the biggest milestones and it meant so much!
    Many prayers for continued good days and good eating!!!
    Mom to Dakota 12-25-2008
    RCDH survivor/ Shands alumnae