Let's Start at the Very Beginning...

On September 15th, Katy and Andy found out that Baby Jacob has a life-threatening condition called Congenital Diaphragmatic Hernia (CDH). CDH is a very serious condition in which a hole in the diaphragm allows abdominal organs to move into the chest restricting lung development. In Jacob's case, his liver is also squishing his heart and displacing other organs. CDH occurs in about 1 out of every 3,000 pregnancies and has a mortality rate of 50%. To make matters more complicated, Jacob has Right-Sided CDH which only occurs in about 10% of CDH cases and is typically more severe. They are so blessed to have found this out when they did, or Baby Jacob would have surely died at birth.

They will be delivering at UW Hospital in Seattle and later transferred to Seattle Children’s. Thank you to everyone who has already begun praying, and everyone who will now. Baby Jacob is blessed to have all of you thinking and praying for him.

Weathering a New Storm

Mar 10, 2012 -So yesterday Jacob had an awesome eating day!  He took all his goal feeds by mouth and did so in a reasonable amount of time. The solution: New bottle nipples that are a size up. I think that after being sick, Jacob just didn't have it in him to bottle feed effectively with his thickened milk. Because of aspiration problems we couldn't thin the milk out, so I just thought we would try a larger size nipple. He did soooo much better. Besides that, he had a much greater appetite as well and was waking right on time for all of his feedings. Now the question is: Was that just to prepare him for the stomach flu??

Yes, that's right. We have had a 24 hour stomach flu in our house. We were hoping Jacob would be spared but with Hazel infecting everything in site and putting his paci in her mouth then his, Jacob didn't have much of a chance. About 4:30 this morning Jacob starting throwing up. He threw up about 4 times in thirty minutes so I knew it was not just the normal thing.

I called his pediatrician's office (who always has one of their doctors answering any and all calls-no answering service or nurse to go through first!) The doctor suggested to start Pedialyte right away in small doses and breastmilk. Another miraculous feature of breastmilk is it doesn't upset the stomach like formula or anything else for that matter. The doctor stressed breastmilk was okay but not formula. It was the first time I have been truly thankful for the NG tube. If Jacob didn't have the tube we would have to thicken any liquids he was to swallow, thus increasing his chances of an upset stomach and more throwing up. We have been able to keep Jacob hydrated and content. He has thrown up a few more times, but for the most part, he has been able to keep down his fluids. Now I expect a fever to follow for about 12-24 hours like Landon and Hazel had, but that is easily managed. It's always scary when an infant gets the throw-ups and/or diarrhea. It is especially scary when a baby like Jacob gets sick. Hopefully, we are weathering this storm and won't have to go to the hospital as Jacob seems to be in good (however sleepy) spirits!


  1. Oh Katy. I am so sorry. Poor Jacob and poor you.

    Am kind of loving your brilliance in coming up with the faster flow nipples solution too. You amazing mama, you.


  2. I am praying for your family's health and for yours and Andy's stamina. And I thank God for your wisdom in finding solutions!!!
    Hugs, LaVonne