Let's Start at the Very Beginning...

On September 15th, Katy and Andy found out that Baby Jacob has a life-threatening condition called Congenital Diaphragmatic Hernia (CDH). CDH is a very serious condition in which a hole in the diaphragm allows abdominal organs to move into the chest restricting lung development. In Jacob's case, his liver is also squishing his heart and displacing other organs. CDH occurs in about 1 out of every 3,000 pregnancies and has a mortality rate of 50%. To make matters more complicated, Jacob has Right-Sided CDH which only occurs in about 10% of CDH cases and is typically more severe. They are so blessed to have found this out when they did, or Baby Jacob would have surely died at birth.

They will be delivering at UW Hospital in Seattle and later transferred to Seattle Children’s. Thank you to everyone who has already begun praying, and everyone who will now. Baby Jacob is blessed to have all of you thinking and praying for him.

Can't Catch a Break

Dec 8, 2011 -When is poor little Jacob going to catch a break? Tonight while I was holding Jacob his oxygen desaturated to 73% and remained in the 70s to low/mid 80s for quite some time. Jacob has been at 98-100% practically all the time since his extubation. His chest x-ray showed an atelectasis, a partial collapse, of his right lung. Now we are back to square one. Just when we thought we'd finally have a positive day on the floor, this gets thrown in our face (more so Jacob's!) His feeds are stopped once again. Jakey hasn't had but maybe 30 ml (about 6 tsp) of milk in the past five days (which have mostly been thrown up.) He cannot live on just 15ml/hr drips of basic sugar water fluids. I don't understand when enough is enough. We are frustrated, stressed, and tired beyond belief. We can't imagine how poor Jacob feels.

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