Let's Start at the Very Beginning...

On September 15th, Katy and Andy found out that Baby Jacob has a life-threatening condition called Congenital Diaphragmatic Hernia (CDH). CDH is a very serious condition in which a hole in the diaphragm allows abdominal organs to move into the chest restricting lung development. In Jacob's case, his liver is also squishing his heart and displacing other organs. CDH occurs in about 1 out of every 3,000 pregnancies and has a mortality rate of 50%. To make matters more complicated, Jacob has Right-Sided CDH which only occurs in about 10% of CDH cases and is typically more severe. They are so blessed to have found this out when they did, or Baby Jacob would have surely died at birth.

They will be delivering at UW Hospital in Seattle and later transferred to Seattle Children’s. Thank you to everyone who has already begun praying, and everyone who will now. Baby Jacob is blessed to have all of you thinking and praying for him.

Teaming Up

Dec 9, 2011 -Jacob is doing good and we have been catching up on much needed sleep. So far the milk Jacob is getting is being digested and he hasn't thrown up once. He's getting bright eyed again and looking around. Two days ago he looked near death to me, like he was giving up. It was hard to even look at him. So things are getting much better. We had a meeting a team made up of a surgeon, surgery nurse practitioner, charge nurse, Jacob's nurse, and a hospital social worker to discuss the mismanagement of Jacob's care and the nursing/resident mistakes we have witnessed. All went well with our meeting and the hospital personnel are taking our complaints very seriously. They are now providing Jacob with the care he needs. We feel we are advocating not only for Jacob but other patients and their families who may not feel as comfortable about speaking out about concerns they may have as well. Hopefully, some administrative and nursing safety changes will be made to ensure consistent and competent care for all children treated here at Seattle Children's. For now, Jacob is being treated as a VIP (as he deserves!) : )

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