Let's Start at the Very Beginning...

On September 15th, Katy and Andy found out that Baby Jacob has a life-threatening condition called Congenital Diaphragmatic Hernia (CDH). CDH is a very serious condition in which a hole in the diaphragm allows abdominal organs to move into the chest restricting lung development. In Jacob's case, his liver is also squishing his heart and displacing other organs. CDH occurs in about 1 out of every 3,000 pregnancies and has a mortality rate of 50%. To make matters more complicated, Jacob has Right-Sided CDH which only occurs in about 10% of CDH cases and is typically more severe. They are so blessed to have found this out when they did, or Baby Jacob would have surely died at birth.

They will be delivering at UW Hospital in Seattle and later transferred to Seattle Children’s. Thank you to everyone who has already begun praying, and everyone who will now. Baby Jacob is blessed to have all of you thinking and praying for him.

Hiccup

Dec 12, 2011 -Jacob is now 48 days old. He has recovered from his pyloric stenosis repair surgery and collapsed right lung. He is up to full feeds, continues to be on 1 liter of oxygen, and is gaining weight. Jacob has pretty much achieved the goals placed before him. One little hiccup to mention: Jacob has been having high blood pressure. He had a kidney ultrasound done yesterday which was "normal" (my favorite word!) So far everything seems okay, but we don't have an answer. Specialists will be consulting today and hopefully we will get that part figured out soon so we can still be on the homecoming path! This week we will be doing more training to learn how to do proper NG placement, using his feeding and oxygen pump, and giving meds at home. It appears the nurses think Jacob is ready to go home soon, but we haven't heard it officially from the horse's, I mean doctor's, mouth. Andrew and I continue to pray for a Christmas homecoming!
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