Let's Start at the Very Beginning...

On September 15th, Katy and Andy found out that Baby Jacob has a life-threatening condition called Congenital Diaphragmatic Hernia (CDH). CDH is a very serious condition in which a hole in the diaphragm allows abdominal organs to move into the chest restricting lung development. In Jacob's case, his liver is also squishing his heart and displacing other organs. CDH occurs in about 1 out of every 3,000 pregnancies and has a mortality rate of 50%. To make matters more complicated, Jacob has Right-Sided CDH which only occurs in about 10% of CDH cases and is typically more severe. They are so blessed to have found this out when they did, or Baby Jacob would have surely died at birth.

They will be delivering at UW Hospital in Seattle and later transferred to Seattle Children’s. Thank you to everyone who has already begun praying, and everyone who will now. Baby Jacob is blessed to have all of you thinking and praying for him.

My Little Valentine

Not feeling too hot but still trying to give a little smile.

Feb 12, 2012 -One year ago, God unexpectedly decided we needed an addition to our family. I never knew my heart could grow so big, and I had so much love to give. Despite all the challenges over the past few months, Jacob has been such a sweet blessing to our lives, and I would do it all over again just to have my dear little boy. He never fails to bring a smile to my face. His eyes are full of wisdom and he has a happiness within him that you wouldn't expect from someone that has been through such trials as he has. Even when he is feeling really crummy, he manages to turn up the corner of his mouth, even if just a little.

"Look how good I can stick out my tongue now!"
"I'm tired, Mommy. Can we be done now?"
February 22~Update

Jacob is feeling worse than ever. We have been to the doctor twice in the last two days. He has what would be just a simple cold for you and me, but it has thrown him many steps backwards. He is fully fed via feeding tube now as his breathing is too labored to eat. He also has a very wet cough and is quite congested. Jacob's ears are fine, and he has been checked out for RSV twice. It has been negative although the doctor said he's acting like and all his symptoms are exactly like RSV. When she said that and said she wanted to test him again, I almost started to cry. We'll get through this though. It's just taking a LONG time! He started a 6-day round of steroids last night, so hopefully that will give him some relief soon but for now they are making him very irritable. (He was like this the last time he was on steroids.) He has spent the last day just crying and crying anytime he is awake (crying makes him cough more, coughing makes him gag and choke, gagging and choking always ends in throwing up.) I can't wait for winter and this cold season to end!

1 comment:

  1. Dear Katy, I'm just catching up now that we're home from hospital. I am so sorry that Jacob is so sick! Are you treating him at home or have they wanted him to come into hospital? It must be so awful to watch your babe take steps backwards, especially with the breathing. How are you holding up? Do you have some help? I know what it is like when theses CDH kids are sick and need ALL of our focus. Hang in there, mama.

    I see this is from last week so I'll hope for another update when you have a chance. Thinking of you.